I knew things were going my way a bit too much, after months and months of struggling I finally had my Occupational Therapy assessment last Tuesday, she sent an urgent fax to the OT from the council to come see to the adaptations I need to continue living independently.
It's gotten so bad that I haven't able to use my over the bath shower that the OT had installed for me just after we moved into this house about 8 years ago.
So both she and OT at the hospital say I need a different shower that I can walk into, the hospital OT called it simply a walk in shower the OT today said I needed a 'split level shower' given the degree of my disability now due to the degeneration of my lower limbs.
Thursday, 9 February 2012
Monday, 6 February 2012
Another Wasted Day
Well only half a day or so this time. After waiting in on Thursday all day at my brother's for his new modem to be delivered and it was a no show, we were there early again today to wait for it's replacement to be delivered. Brother phoned BT at lunchtime and found that what he was told on Friday about it being through today was wrong and it wouldn't be here till tomorrow. So he phoned us and we came home about 1.30pm.
So early day tomorrow and goodness knows how long a wait for this delivery if it actually comes that is. Then on Wednesday at 2.50pm I have my physiotherapist which tends to be brief thankfully now that I have had my assessment. 10 minutes at the most, takes me longer to struggle my way down the long corridor to and from the room my therapist is situated in.
Thursday, Friday and Monday the schools have in-service days so all three of my nephews will descend on us at before 8am in the morning and stay all day till their parents pick them up after school at around 5pm.
The Occupational Therapist from the council's social work department, strangely the same one who came to assess me several years ago and had my now unusable shower put in for me is the one doing the assessment once again. She is coming at 11am on Thursday as well to see me the OT at the hospital faxed through an urgent fax about getting this OT out to hopefully get me the aids/help around the house that I badly need now.
Then on Friday at 10.20 am I have an appointment to have my tooth extracted.
All in all a very busy week. Next week thankfully I have no appointments and am clear until two weeks tomorrow when I am due back at the OT at the hospital on Tuesday the 21st at 3.30pm.
So early day tomorrow and goodness knows how long a wait for this delivery if it actually comes that is. Then on Wednesday at 2.50pm I have my physiotherapist which tends to be brief thankfully now that I have had my assessment. 10 minutes at the most, takes me longer to struggle my way down the long corridor to and from the room my therapist is situated in.
Thursday, Friday and Monday the schools have in-service days so all three of my nephews will descend on us at before 8am in the morning and stay all day till their parents pick them up after school at around 5pm.
The Occupational Therapist from the council's social work department, strangely the same one who came to assess me several years ago and had my now unusable shower put in for me is the one doing the assessment once again. She is coming at 11am on Thursday as well to see me the OT at the hospital faxed through an urgent fax about getting this OT out to hopefully get me the aids/help around the house that I badly need now.
Then on Friday at 10.20 am I have an appointment to have my tooth extracted.
All in all a very busy week. Next week thankfully I have no appointments and am clear until two weeks tomorrow when I am due back at the OT at the hospital on Tuesday the 21st at 3.30pm.
Friday, 3 February 2012
Filling Day and New Blog
Well, I had my filling done and had my teeth scaled and polished. I also got the results of my x-ray on my tooth. My dentist suggested an extraction so I am going back next Friday to have my tooth extracted and a dentist from the dental college is being brought in to do it as there is something awkward about the tooth which means she needs expert help to extract it.
I also posted my very brief intro for my new blog Invisible Me where I will post more well thought out and written posts on my life as a disabled person living in this dire time for ill/disabled within the UK. Not up to the eloquent blogs and postings of such disabled bloggers as Sue Marsh and Bendy Girl but at least it will be honest!
I also posted my very brief intro for my new blog Invisible Me where I will post more well thought out and written posts on my life as a disabled person living in this dire time for ill/disabled within the UK. Not up to the eloquent blogs and postings of such disabled bloggers as Sue Marsh and Bendy Girl but at least it will be honest!
Thursday, 2 February 2012
Toothy Thoughts
Tomorrow I return to the dentist's to see if my tooth will be refilled or extracted. I went to my check-up yesterday and told my dentist that I have two missing fillings. One in a tooth that keeps loosing fillings regularly and the other I believed was in a tooth filled last check-up time.
The dentist said the hole/chip was in the tooth next to the two that were filled together last time but looking at my trouble tooth she thinks that it is too deep to successfully keep a filling in place so might be better to extract it. Something I've been secretly wanting for a few years now, as a have had to have it refilled at least 4 times in the last five years or so and the last twice it took more than one attempt for the filling to stay in.
The dentist said the hole/chip was in the tooth next to the two that were filled together last time but looking at my trouble tooth she thinks that it is too deep to successfully keep a filling in place so might be better to extract it. Something I've been secretly wanting for a few years now, as a have had to have it refilled at least 4 times in the last five years or so and the last twice it took more than one attempt for the filling to stay in.
Wednesday, 1 February 2012
Again With the Goals
Well in October when I briefly saw the OT at the hospital she asked me to compile a list of my top 5 'goals' I wanted to work towards through therapy and aids when needed.
I hate these goals.
Why?
Because I can never come up with anything and have no legitimate idea what she wants me to say exactly. When asked yesterday at the 90 minutes assessment I went through all I could come up with was regaining control of my personal hygiene. She asked for other goals and after a few minutes of sitting blankly staring and scrambling mentally to come up with another goal. Any other goal but finally had to admit I couldn't think of one single thing presently as my mind was totally drawing a blank.
So again she wants me to think and compile some other goals for my next appointment which should be sometime in the next month.
I've goggled, I've searched all the various health related blogs and forums I visit, but still drawing a complete blank on that front.
I'll just have to ask her what goals is she continually asking about. I was referred to gain help with my seriously degenerated condition from my specialist. I knew I needed help either through the use of aids, therapy or probably both to help me regain functional independence which I no longer have having to rely heavily on my Mother as my carer on a daily basis.
I can dress myself, if I wear 100% stretchy clothes which don't require me lifting my arms too high and can get on and off using my one relatively 'good' arm. I can with struggle make my own bed which really only relies on me tidying up my duvet over my mattress. I can't however change the bed clothes just straighten them up when required.
Yes, I can use our hoover, just because we bought the lightest one we could find which I can use sitting down on my bed to hoover the limited carpet area left inside my bedroom.
But that's about it. Showering, hair, cooking, making drinks ... etc., etc., etc., require some-else to do the actual work for me.
So apart from helping me regain the ability to take all aspect, or most of them anyway, for personal hygiene onto myself all I can think of was gaining the ability to maybe cook a simple meal rather than only being able to make myself a very very simple snack. Which is my current ability.
So apart from hygiene, cooking and making myself a hot drink that's about it for goals that I can think of. All important to daily tasks. Also help with doing heavier shall we say house keeping tasks might also be required along the way but apart from those I draw a blank. I'll just have to ask for examples of these apparently important goals as I have no idea really waht she asking me for.
I hate these goals.
Why?
Because I can never come up with anything and have no legitimate idea what she wants me to say exactly. When asked yesterday at the 90 minutes assessment I went through all I could come up with was regaining control of my personal hygiene. She asked for other goals and after a few minutes of sitting blankly staring and scrambling mentally to come up with another goal. Any other goal but finally had to admit I couldn't think of one single thing presently as my mind was totally drawing a blank.
So again she wants me to think and compile some other goals for my next appointment which should be sometime in the next month.
I've goggled, I've searched all the various health related blogs and forums I visit, but still drawing a complete blank on that front.
I'll just have to ask her what goals is she continually asking about. I was referred to gain help with my seriously degenerated condition from my specialist. I knew I needed help either through the use of aids, therapy or probably both to help me regain functional independence which I no longer have having to rely heavily on my Mother as my carer on a daily basis.
I can dress myself, if I wear 100% stretchy clothes which don't require me lifting my arms too high and can get on and off using my one relatively 'good' arm. I can with struggle make my own bed which really only relies on me tidying up my duvet over my mattress. I can't however change the bed clothes just straighten them up when required.
Yes, I can use our hoover, just because we bought the lightest one we could find which I can use sitting down on my bed to hoover the limited carpet area left inside my bedroom.
But that's about it. Showering, hair, cooking, making drinks ... etc., etc., etc., require some-else to do the actual work for me.
So apart from helping me regain the ability to take all aspect, or most of them anyway, for personal hygiene onto myself all I can think of was gaining the ability to maybe cook a simple meal rather than only being able to make myself a very very simple snack. Which is my current ability.
So apart from hygiene, cooking and making myself a hot drink that's about it for goals that I can think of. All important to daily tasks. Also help with doing heavier shall we say house keeping tasks might also be required along the way but apart from those I draw a blank. I'll just have to ask for examples of these apparently important goals as I have no idea really waht she asking me for.
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